I started another little blog thing for re-honing my writing and word wrangling. Feel free to take a look if you’re so inclined. I’m not going to worry about how it looks or keeping the “look and feel” consistent throughout. Sometimes I get bogged down with that sort of thing rather than concentrating on the writing part. The blog is about my strange cooking habits. Perhaps some of it really shouldn’t be admitted to, but there you go! 😀
Category Archives: Random Life
I’m baaaack. Yep, I’ve been in the hospital again. It’s been so long since I posted that I can’t remember what I last shared about my hospital adventures. Let’s just say of the last 2 years, I’ve spent about 10 months of it in the hospital. This past Christmas was the first one in three years that I wasn’t in the hospital. It was good to be home for Christmas, even if I wasn’t entirely ambulatory.
This last hospital adventure started out with what was supposed to be a couple of days to take some IV antibiotics to combat an infection building in some skin grafting I had done. The hospital decided to administer a med that was on my allergy list. :O On Thanksgiving evening I coded and ended up in a coma and on a ventilator for five days. I guess they had to use the paddles on me and everything. They called my poor mother at 5 am and told her to come right away because they weren’t sure they could get me back.
I guess I’m too cantankerous to chuck it in yet, and when they took the ventilator out to see if I could breathe on my own I woke and said “Who the hell are you people!?”
They told my mom that I might have some brain issues as they had no idea how long I’d been out before they found me. I do notice that it’s harder to do crossword puzzles now, and I do have an annoying hand tremor that makes coloring a bit difficult. Crochet still works ok though!
My doctor for this last hospital stay is referred to as “Doctor Santa” by many of the aides and nurses. He has a glorious head of white curly hair that falls to his shoulders. He has blue eyes that dance when he’s joking, though you’d never know he jokes from his deadpan delivery and dry wit. My kidney doctor came in one day while the Doc Santa was in my room and says “Is this not the most handsome doctor in the hospital?” I didn’t comment but I was thinking that several of my doctors had a sort of GQ model look about them. :O
My mom had brought a lap robe that I crocheted to the hospital. One day when Dr. Santa came in he asked if I had crocheted it myself. I was surprised that he even noticed the thing. I said yes and he proceeded to say how nice it looked and what a nice border it had and how there was no buckling and how neat and even the stitches were. I thought to myself, here’s a man who either crochets or has someone at home who does!
While I was away my desktop computer pined so much for me that it died apparently. :O Luckily I had a laptop that I can use. I haven’t had the energy (nor the inclination) to get all of my software and such ported over so there won’t be many pictures from me for awhile. I’ve been thinking of doing a little side blog about not much just to get back into the routine of writing and typing and sitting up again.
I’m more mobile now. I was able to ditch the wheelchair and graduate to a rollator, which is a rolling walker that has a seat on it. So if I get wobbly legged I can sit down for a minute. Since I no longer drive, I had to take Wheels home from the hospital. Those of you who have read my adventures know that can be a trip. This last homecoming, I couldn’t get up out of the bus seat. I ended up having t call the fire rescue people to get me off the bus. They were very nice (and also had the look of GQ about them…) and helped me all the way into my apartment. I confess I have a Robert Plant poster hanging up in my living room. One of the firemen says “Oh cool! Are you a Robert Plant fan, too?!” It’s always good to run into other people that share your fandoms.
So, there you have it. My adventures for some time. Hopefully I won’t find myself in the hospital for long term stays any more. I still have to go for outpatient things, but I’m ready to stay home now.
It was recently reported that Prince died from a Fentanyl overdose. It’s sad, I think. But it gave me pause. During my five-month stay in the hospital, pain management was a big thing. At one point my doctor set me up with the Fentanyl Transdermal Patch in a very low dose. I can understand why people with pain would love the stuff. It works in small doses. But another part of my stay involved getting back on my feet and walking again after lying down for a few months.
The first therapy session after having the patch applied I did my usual thing of standing up using a walker which was about as far as I’d gotten in the process. On this day when I stood up, the room began to spin wildly around me. There were sparkly stars everywhere. The therapists began to have auras. I’ve never been able to see auras before even though many of my college friends had always insisted they’d seen some, usually after ingesting something mysterious…
Needless to say, back into bed I went while the stars and auras faded. And that was the last of the Fentanyl for me!! One of the therapists later said she thought I was looking decidedly high that day when she came in.
I guess I’m a stick in the mud. I never really understood the getting high thing, especially if that was an example. I was also given Dilaudid during staple pullings and wound treatments. There’s another one that’ll work on your head. If they gave it fast (via IV) there was a huge head rush but also an instant relief of pain. I hated that head rush. But some nurses said that people liked it.
Me, I think my own thoughts and peculiarities are enough wackiness for my brain. Or maybe I’ve just gotten old.
Didja miss me? I’m now back at home after being in the hospital since November 20th of last year. Yep. FIVE MONTHS in long term hospital care. Not a picnic let me tell you. And I’m still not ambulatory–my livingroom now looks like a hospital room. But at least I am home, which feels nice.
I’ve been doing crafty things while doing all that lying down though. A little crochet. And I’ve become obsessed with adult coloring books!
I’ll make a longer post with an overview of the last months later. Right now I’m just trying to get caught up with month’s worth of emails. :O
I’ve been pondering a little food blog for awhile. Lately my crochet mojo has been low so I thought I’d spend a little time working on the cooking blog. If you’d like to take a peek it’s:
It’s kind of a quirky niche but since I’ve been cooking without using a stove for well over 10 years now it does work out and has some advantages, especially if you are an apartment-dweller or a road warrior!
The first post turned out to be kinda health-related but rest assured that won’t be the usual thing! 😀
It doesn’t seem like a year since my dad passed away, but April 7 marked the day. In the first irony, that’s also my mom’s birthday. In the second irony I spent the anniversary once again back in the hospital one floor below where my dad was.
Luckily, my ailment was treatable, but so far they haven’t really decided what the deal is. In the space of a month I’ve had 3 liters of fluid drawn off my left lung. It’s frustrating because I’ve had stage 3 Lymphedema and possibly lipo-lymphedema for many years. And yet, most doctors won’t even consider that as a contributing factor. Some doctors don’t even believe it exists. Now there’s a bummer when you’re trying to get treatment!
But, for now I’m back home and doing all right. We’ll see how that lasts. Everybody basically threw up their hands and said “Ok, let’s just go with a low salt diet and see what that does.” Yes. I’m in hell.
But, as usual there’s always a story with my adventures. And this time was no different. I don’t usually list Benadryl as as allergy at the hospital because it’s an over the counter drug and I don’t expect to be given it. And it’s not so much an allergy as an oddity. It makes me higher than a kite! If I ever wanted to be high all the time I could do it very cheaply!
Anyway, I was about to have a cat scan which required me to drink a bottle of the most awful stuff I’ve ever put in my mouth. It took all I had to keep from upchucking. Just before I had to drink the stuff, the nurse popped some kind of medication into my IV and said “That’s your Benadryl.”
I made something akin to a horrified cry and said I had bad reactions to that stuff! She also looked horrified. Not only had I been given it, but in my IV to boot. It didn’t take long! I started feeling light-headed and my eyes started feeling like they just wanted to float around in their sockets. Then the thing that’s most annoying–the visual hallucinations. This time they were rather interesting. I saw writing appearing everywhere. I first noticed it on a picture frame on the wall. I pondered it, not remembering that the frame had been decorated. It was a black frame and the writing appeared red. Then the writing was everywhere. On the walls, the clock, the floor, the medical equipment. I couldn’t read it, but it was very artistic! I was still loopy during the scan but it had begun to wear off.
One of the people doing the scan wanted to know if I knew why they’d given me the Benadryl in the first place. I said no. She said it was for my iodine allergy. Er… what iodine allergy? Apparently, since I said I couldn’t eat shellfish without getting itchy eyes, runny nose and sneezing, an iodine allergy was inferred. Yeesh.
I’m glad it wasn’t the bug hallucination this time…
My crochet time has been greatly curtailed the last ten days as I languished in the hospital. The worst part of the whole ordeal was the IVs. I apparently have “bad veins” and they like to reject the IV after a day or two. At one point I had an IV assembly crowning the top of my right thumb. As a right handed person, this makes some basic life functions a bit difficult (TMI!!!).
Of course there always has to be some weird thing that happens on any sort of outing and this was no exception. The hospital I went to has remodeled and made all their rooms private, but they are about the size of a closet. One afternoon nurse #24 was installing IV needle #15 when she says “what’s that smell?” There was a definite electrical odor wafting about the room. It got stronger and suddenly smoke was roiling from one of the light fixtures on the wall.
Now there are seven people in my tiny room in a state of pandemonium. The IV nurse is shouting to all the other people to move me immediately since I’m in there for a respiratory issue to begin with. The people begin packing up everything. The room had a reclining chair that I had been sleeping in because the bed was so awful. One of the male nurses decided to just push me and the chair down the hall to the new room. The chair didn’t make a good substitute for a wheel chair and it veered wildly down the hall. Another nurse took to guiding it from the front. Other patients on the floor were perplexed by the whole scene.
The upside was the new room was about 4 times bigger than the old one, with a bathroom that one could actually get into while dragging an IV rig along. The previous bath required the IV to sit outside the door, making any sense of privacy non-existent.
This hospital uses a system of rotating staff so you have different people nearly every day, but after 5 days you start seeing some of the same ones again. Apparently the rapid room change was the talk of the floor and the joke was that I’d do anything to get a better room, even if it meant a fire.
I’m glad to be back home to my own bed and my own bath. I will never complain about my own bed again. Compared to the hospital, it’s like sleeping on a cloud!